P2P FOIA Documents, Part 7—Collins, Murray and Maier: Trouble in NIH Paradise

The Other Side Of The Stretcher:

More DISGRACEFUL behavior from the same agency of FRAUDS and CROOKS that were involved in the AIDS epidemic!

Originally posted on Thoughts About M.E.:

David Murray’s (Director of NIH’s Office of Disease Prevention) noticing of a ProHealth blog entry started an avalanche of bizarre email exchanges within NIH that included, among others, Francis Collins, James Anderson and Larry Tabak. I received these emails after winning my IOM lawsuit.

Murray was worried about the ProHealth piece calling NIH out for the ridiculously small amount of NIH funding our disease receives. He rings the alarm bells over the bad PR (page 1):

… reporting that chronic fatigue syndrome funding has declined while “NIH funding levels explode.” Right now the organization is spending approximately as much on CFS as it was in 1992. Is asserts for this reason that “The NIH’s ‘commitment’ to ‘enhancing the health” of people with Chronic Fatigue Syndrome has declined over time,” devoting under .02% of its budget to the disease, or $6.00 per patient.

It made me wonder if we should put something on…

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P2P FOIA Documents, Part 6—”File all these responses. No need to answer them directly.”

The Other Side Of The Stretcher:

P2P FOIA Documents, Part 6—”File all these responses. No need to answer them directly.”
Another thanks to Jeannette Burmeister for obtaining these documents through her lawsuit that shows proof on paper the disgrace of the medical system in regards to patients with these illnesses that are considered as “controversial” and “non mainstream”.

Originally posted on Thoughts About M.E.:

Here are more P2P emails that were produced to me after I won my IOM FOIA lawsuit. Today’s documents are NIH and AHRQ emails relating to inquiries from the public regarding the ME/CFS P2P program and the “TPs,” the talking points NIH developed as a canned response to any—and I mean any—inquiry regarding the program, regardless of whether the talking points were actually responsive.  Please keep in mind that NIH’s P2P document production in response to my FOIA request is in violation of FOIA in numerous respects (e.g., regarding exemptions claimed) and that, based on the agency’s past behavior, there are likely documents regarding the talking points and public inquiries that have not been produced or that have been “misplaced.”

This batch of emails starts with somebody within the agency—clearly entirely unfamiliar with the agency’s P2P (then EbMW) program—consulting the patient forum, “ME/CFS Forums,” to educate him or herself (page 2):

This inquiry came in about an…

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Kaci Hickox: ‘Stop Calling me the ‘Ebola Nurse’ — Now!’

Originally posted on TIME:

Kaci Hickox, the health worker who objected to the conditions of her quarantine upon returning from west Africa, is now objecting to being called “the Ebola Nurse” in a new op-ed that accuses state politicians of cynically manipulating public fears for political gain.

“I never had Ebola,” Hickox wrote (original emphasis hers) in a Monday op-ed in the Guardian, “so please stop calling me “the Ebola Nurse” – now!”

Hickox accused Governors Chris Christie and Paul LePage, of New Jersey and Maine respectively, of imposing “overzealous” quarantines and exaggerating the risks posed by asymptomatic health workers.

Read more at the Guardian.

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Federal Court awards $139,147 in Attorneys’ Fees Against HHS and NIH in IOM FOIA Case

The Other Side Of The Stretcher:

A BIG BIG Contratulations To Jeannette Burmeister Who Showed Everyone It is Not Impossible To Be The Govt With An FOIA Lawsuit!!!
And Attorney’s Fees Too!!!! :)

Originally posted on Thoughts About M.E.:

The U.S. District for the Northern District of California awarded me today–having won my FOIA lawsuit–my entire attorneys’ fees in the amount of $139,147. Judge Vince Chhabria ordered the defendants, HHS and NIH, to pay me these fees. Please see below for a copy of the order.

In the Court’s order, the Judge noted:

Ms. Burmeister is clearly the prevailing party in the litigation. Moreover, as outlined in the order granting Ms. Burmeister’s motion for summary judgment, the government’s conduct throughout its dispute with Ms. Burmeister was unreasonable.  [emphasis added]

The defendants’ conduct in this matter has been absolutely deplorable. They have fought tooth and nail trying to avoid compliance with federal law and to delay production of relevant documents relating to the IOM project as long as possible. Throughout the entire proceedings, the defendants have acted unreasonably and shamefully, really, in their relentless attempts to circumvent their obligations under FOIA. Their inexcusable conduct…

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Karina Hansen: prisoner of Denmark

This very sad case is none other than state sponsored bullying and persecution of a patient with physical illness tossed into the psychological rabbit hole hell of psychiatry.

Psychiatry is the biggest fraud in the history of medicine!

Karina Hansen is still not home :(

Karina Hansen: prisoner of Denmark.

 

Trolls: Click  *HERE* for further information


Parents Learn to Push Back, Forcefully, Against Doctors Who Have Taken Paul Offit’s Bullying 101

The Other Side Of The Stretcher:

The promise is supposed to be “Do No Harm”
Not harrass and bully the parents who have a right to say no!

Trolls- Look above and click “Trolls” for further information!

Originally posted on Michael Chad (Stay-at-Home Dad):

Did you see this nonsense in the LA Times on Friday?  Dr. Paul Offit speaking to “several dozen physicians” in a UCLA lecture hall (that holds several hundred, wonder why it was so empty), teaching them to push back against parents who question vaccines, lest moms and dads be under the impression that they have a vote in their child’s medical care.  These are doctors that apparently have no retort to classic questions like, “Why is autism listed as a side effect of a vaccine on the package insert?”

gentle push back

Given that the only people to deal with the fallout of vaccinating a child who doesn’t have the hard-wiring to withstand vaccines are the parents, why is Paul Offit teaching doctors that what the parents want is irrelevant to his agenda?  What’s missing from the Times’ story is the fact that most parents who don’t vaccinate take that position because they…

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P2P FOIA Documents—Part 1

The Other Side Of The Stretcher:

I guess NIH never thought a patient would beat them in a #FOIA lawsuit!
They tend to not follow the law and respond to these requests!
Jeannette Burmeister has done an awesome job! Not easy for a patient do this amount of work!
We must congratulate here again for a job well done!

Originally posted on Thoughts About M.E.:

Earlier in the year, I filed a FOIA request with HHS for documents relating to the ME/CFS P2P. Although I received some fairly unremarkable and some heavily redacted documents a while ago, I received the vast majority of documents, which also happen to be more interesting, only recently. In fact, those documents were sent to me within days of my winning my FOIA lawsuit relating to the IOM. Quite a coincidence, wouldn’t you say?

Once again, HHS violated FOIA by failing to make the required determination within the statutory 20 business days. In fact, they took more than 8 months! I could have brought a lawsuit based on that violation alone. I did not. However, I have now filed an administrative appeal with HHS challenging the adequacy of the document search and production.

In the meantime, I will make the documents produced to me available on my blog (as my health permits; I…

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