US District Court: HHS/NIH Violated Federal Law in Response to FOIA Request for IOM Documents

The Other Side Of The Stretcher:

ThankyouJeannette
This is a Major Win For the M.E. Patient Community!
A Big Thanks From All of Us In The M.E. Patient Community To
Patient Advocate Attorney Extraordinare
Jeanette Burmeister For A Job Well Done!!!!
:)

Originally posted on Thoughts About M.E.:

I am pleased to give an update on my FOIA lawsuit:

Yesterday, the United States District Court for the Northern District of California ruled that HHSandNIH(government)violated the Freedom of Information Act (FOIA) when they improperly withheld documents from me in response to my FOIA request regarding HHS’s contract with the Institute of Medicine (IOM) for the study of diagnostic criteria for ME/CFS.

Accordingly, the Court granted my motion for summary judgment and ordered the government “to produce, within 60 days, all documents responsive to [my] request that are not covered by any exemption to FOIA’s disclosure requirements.” [emphasis added] The Court also denied the government’s motion for summary judgment asking for a dismissal of my lawsuit.

I believe that holding HHS and NIH legally responsible for their violation of federal law is a tremendous victory for our patient population. However, since this litigation is ongoing…

View original 880 more words


Man-Made AIDS & The Scientific Cover-Up

The Other Side Of The Stretcher:

AIDS and the Doctors of Death- In other words, these doctors are also the cause of M.E patients not receiving treatment.
Reknown Dr. Anthony Fauci, HIV/AIDS is his baby. He used to keep a roster of patients who were the HIV Negative AIDS patients which are the M.E. or the CDC Construct- “CFS” patients.
Dr Anthony Fauci does not want anyone to know that you do not have to have HIV to have AIDS which a % of M.E or the CDC construct “CFS” patients have.
Dr. Robert Gallo, worked in the same lab as M.E scientist Dr Elaine Defreitas at the Wistar Institute in the 80’s and early 90’s. Dr Elaine Defreitas helped Dr Gallo map out the HTLV virus and Dr Gallo was helping Dr Elaine Defreitas with “CFS” Retroviral research. When Dr Elaine Defreitas was about to make the breakthrough, she was in a car accident where she had to take a early retirement because of her injuries. How convienient was that!
It is also known that Dr Gallo fired Dr Frank Ruscetti because he did not want anyone else to get credit for the HTLV virus discovery.
Dr. Gallo happens to friends with Dr. Fauci- how convienient is that too. It is because of Dr. Fauci, that M.E or CDC “construct” “CFS” has been behind in research over 20 years and also actually does not have any research because M.E/CFS research funding is $5 Million dollar a year thanks to Dr Anthony Fauci who directs all of the research money at NIH, and notice, most of it goes to AIDS.
I do believe NIH has their own Mafia Don!
Gambino Crime Family Boss John Gotti, was called “The Teflon Don”, he was called “The Teflon Don” because they could not get a case stick. But in the end, the Teflon wore out, and John Gotti went to prison! Its only a matter of time that the “Teflon” will wear out at the NIH!

Originally posted on Mission Galactic Freedom:

Man-Made-AIDS-The-Scientific-Cover-Up

Alan Cantwell, MD

There is good reason why the “AIDS is a man-made disease” conspiracy theory refuses to go away. It certainly makes more sense than the official theory claiming AIDS came from Africa where  a hunter in the bush cut himself butchering monkey or chimpanzee meat  sometime  around the 1930s. This supposedly resulted in the introduction  of a primate immunodeficiency virus (now renamed HIV —the human immunodeficiency virus)  into the black African population. From that incident the epidemic purportedly evolved via sex, dirty needles, and urbanization to produce a pandemic in the 1980s  that has killed more that 30 million people.

Over the past thirty years, a few diehard health professionals, including Robert Strecker MD, Leonard G. Horowitz DMD, and this author have provided evidence in videos, books, and Internet reports suggesting that the man-made theory is, in actuality,  the most plausible theory of all. This theory is…

View original 2,099 more words


9 Things You Wish You Could Tell Someone After They Commit Suicide

The Other Side Of The Stretcher:

I would tell them….. Please don’t go……

Originally posted on Thought Catalog:

1. I wish I could’ve talked to you about how serious your problems were getting. I’m someone who doesn’t let many people into my life, because I know what it feels like to have a part of yourself walk away with someone, even acquaintances. When you open up to someone, they become a part of your story. I wish you would have let me have a bigger role in your story.

2. I wish I could tell you that know what it’s like to wake up and feel like nothing around you is worth going through another day, or that life is completely meaningless. I know that when you’re in that state of mind, it’s hard to really hear the kind words of another person. Maybe if we could have just sat there in silence together, just thinking and waiting for the moment of insight when…

View original 723 more words


Karina Hansen: Prisoner of Denmark

The Other Side Of The Stretcher:

KarinaJusticeFor

 

Karina Hansen: Diagnosed Severe ME in 2008 was forcibly removed from her home, February of 2013, taken to the Hammel Neurocenter in Denmark under the orders of Professor Per Fink for mandatory treatment as a psychiatric patient.
Despite the efforts of Karina’s family, friends, The International ME community, and legal team, Karina still remains a psychiatric patient at the Hammel Neuro Center via the orders of Psychiatrists Nils Balle Christensen and Professor Per Fink.
Nils Balle Christensen and Professor Per Fink do not recognize the medical diagnosis of Myalgic Encephalomyalitis as medical diagnosis but as a “Functional Somatic Disorder.”
Justice For Karina: http://justiceforkarina.webs.com
Hammel Neurocenter: http://www.hospitalsenhedmidt.dk/

Originally posted on valerieeliotsmith:

Many of you will already be aware of the case of Karina Hansen. However, for those of you who are unfamiliar with her situation, this is a short re-cap of the facts as far as we know:

Karina, now aged 25, is a citizen of Denmark, a member state of the European Union. She was diagnosed in 2008 with a severe case of the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Her family cared for her at home until February 2013 when state intervention caused her to be forcibly removed to the Hammel Neurocenter for mandatory treatment as a de facto psychiatric patient. Despite the efforts of her family, friends and the international ME/CFS patient community to secure her release and return home, she has remained there ever since. The British charity Invest in ME has offered advice and assistance to the Danish authorities but has, so far, been ignored.

****************

In the last…

View original 848 more words


Global Health: Time to Pay Attention to Chronic Diseases

The Other Side Of The Stretcher:

NIH Director’s Blog: Time To Pay Attention To Chronic Diseases by Dr. Francis Collins
If you do a search through Dr Collins Blog, you will not find anything on M.E., Myalgic Encephalomyelitis or even the “Construct” “Chronic Fatigue Syndrome/CFS

Originally posted on NIH Director's Blog:

Graph of projected deaths by cause in low income countries

Caption: Projected deaths (in millions) by cause in low-income countries. Note increase in non-communicable diseases (orange).
Credit: Adapted from Beaglehole R, Bonita R. Lancet. 2008 Dec 6;372(9654):1988-96.

Greetings from China. I’m here in Shanghai with other biomedical research leaders for two major meetings. The first one, which is the topic of my blog today, is on global health. So, you might expect there to be a lot of talk about malaria, influenza, MERS-CoV, Ebola virus, sleeping sickness, dengue fever, tuberculosis, HIV/AIDS, and other infectious diseases. And those are most certainly topics of intense interest to NIH and our colleagues around the world. But this particular meeting is about a different kind of global health threat that’s becoming a rapidly growing problem: chronic diseases.

While infectious diseases remain a significant problem in the developing world, cancer, heart disease, obesity, diabetes, and other non-communicable diseases are now among the fastest growing causes…

View original 881 more words


One More Update

The Other Side Of The Stretcher:

Love

 

One More Update from Brooke.

Her doctor was able to get hospice care reinstated for her for 60 days.

Today, we live in a time where, being sick is not acceptable, and people who have misunderstood chronic illnesses, there aren’t many medical practitioners who are cut out to care for them.  Not only not cut out to care for them, they have no compassion and pass the patients off as depressed.

Today, it seems as if you don’t have something like cancer or AIDS, your illness doesn’t qualify, as in Brooke’s case, her hospice care was discontinued because she wasn’t “considered to be dying.”  That’s just so awful.

People with chronic illness who are basically living a “living death”, there are no words because I can’t even think of the words because I’m one of those people.  I know I myself will probably die alone, no hospice, no support, nothing.  And I know there is nothing I can do about it. I have come to accept it because unfortunately that’s the way it is.

I ask everyone to pray for peace and comfort for Brooke during this time.

 

Originally posted on Documenting M.E.:

Dear Friends,

Recently there have been a lot of questions in the community about what has happened to me and where I am with things. I am now very near the end of life, and writing posts has become next to impossible, but I wanted to try to get one more out. This post will be written in many parts, and may seem rough around the edges, but it is the best that I can do at this point. I know you will understand.

First, regarding care. My initial reevaluation for hospice care was denied – in part due to misinformation coming from the whole CFS mixup. After this, my doctor agreed to treat me himself, without the aid of nurses since he couldn’t find a way to get any into the home. Things began going downhill so fast, however, that he recently talked the hospice team into readmitting me…

View original 924 more words


“GET” And The House Of Commons Gym Part 4

 

 


Graded Exercise Therapy and The House Of Commons Gym

Part 4

In Memory Of M.E. Patient

Brynmor John

18 April 1934 – 13 December 1988

BrynmorJohnMemorial

 

 

BrynmorJohn1959_1
Brynmor John Circa 1959

Compliments of Flying Officer Pam Gerrity

 

From The Nurse Point of View! 

I will point out again like I said in my previous blog posts, i’m coming from an R.N. point of view for the benefit of the patients because I was an active R.N. until I was no longer able to work because of M.E.

I actually couldn’t respond from a patient point of view because I would lose focus on the subject, and I would end up sounding more like an angry patient than a nurse who is very disappointed because of the lack of the standard of patient care in regards to this illness.

 

Review Of The Facts!

According to Malcolm Hooper’s “Magical Medicine: How To Make A Disease Disappear:”

 

“On 13th December 1988 Brynmor John MP died from ME/CFS. His experience of the illness was all too familiar:

Though there is only a slight gradient from our house to the main road, it could have been the North face of the Eiger. I just could not get up it’. -Brynmor John

He found himself unable to dress; the slightest exertion exhausted him and it took days to regain his strength.

He was irritated by the profusion of psychiatric comment and was trying to ensure better understanding of ME/CFS.

Brynmor John suddenly collapsed and died as he was leaving the House of Commons gym after having been advised to exercise back to fitness.”

.

Let’s Assess!

Brynmor John could no longer walk on that slight gradient from his house to the main road,  as he stated

“I could just not get up it.”


Prior to becoming ill Brynmor John was able walk up that gradient, otherwise he wouldn’t of made that statement.

Brynmor John was to weak to put his clothes on and  he could no longer tolerate exertion.

Brynmor John also suffered the abnormal recovery time to the slightest exertion. as “it took days to regain his strength.”

Prior to becoming ill, Brynmor John did not have a problem dressing before he became ill nor did the slightest exertion exhaust him, otherwise that would not have been noted as well.

Remember, Brynmor John was only 54 years old.  A healthy 54 year old man or woman would not have a problem walking up a slight gradient, would not have a problem dressing,  nor have a problem tolerating exertion.

“Abnormal Recovery Time” is expected as we know in patients with M.E. after exertion.


Abnormal Recovery Time

Abnormal recovery time was already a known symptom of M.E. or Myalgic Encephalomyelitis in 1988.

The 1986 Ramsay Definition for Myalgic Encephalomyelitis Compliments of NAME-US.org Stated:


“Neurological disturbance – an unpredictable state of central nervous system exhaustion following mental or physical exertion which may be delayed and require several days for recovery; an unique neuro-endocrine profile which differs from depression in that the hypothalamic/pituitary/adrenal response to stress is deficient; dysfunction of the autonomic and sensory nervous systems; cognitive problems.”


Brynmor John was suffering other symptoms in addition to the abnormal recovery time!

 

“Not A ‘Seasoned Veteran'”

Malcolm Hooper’s

Magical Medicine: How To Make A Disease Disappear stated that Brynmor John

was trying to ensure better understanding of ME/CFS,” 

which meant he was a newer patient.

Brynmor John was not a “seasoned veteran” as far as being an M.E. patient, Brynmor John was still trying to learn about the illness.

Since Brynmor John was not a “seasoned veteran” of M.E.,  Brynmor John would not of known if the additional symptoms he was suffering were additional complications.


A Closer Look:

I did a search and I found where Brynmor John lived so we could take a look at the property where he lived and the gradient that he stated he could no longer walk up on the way to the Main Rd.

Brynmor John’s actual home address was:  Yale Haven, Station Rd, Church Station, Pontypridd, Rhonnda Cynon Taff, CF38 1AF, U.K. compliments of Welsh Biography Online and Google Maps

Yale Haven is the name of Brynmor John’s house.  Many houses in England have names instead of being noted as a number in a street address.


Google Map of the area:  

The map shows “Yale Haven” which was Brynmor John’s house.
Just north of Yale Haven is  Main Rd.  Station Rd is on the left of Yale Haven.

BrynmorJohnHouseMap


Google Maps Street View:

This is the Station Rd view of Brynmor John’s property which is in back of the trees on the right.

 YaleHavenStationRoadView

 


Google Maps Street View of “Yale Haven”:

Yale Haven, which was Brynmor John’s house is on the right. The Main Rd is on the left.

BrynmorJohnHouse_02

 

The gradient Brynmor John was talking about is on the right side of the house where the driveway is that leads to the street to the Main Rd. 

As you can see, that is a not a long walk.

A person with Mild or Moderate ME could walk that short walk and suffer their post activity exacerbation of symptoms after the fact.

Brynmor John’s symptoms he was experiencing in addition to the abnormal recovery time was different, Brynmor John stated:


“‘Though there is only a slight gradient from our house to the main road, it could have been the North face of the Eiger. I just could not get up it’

Brynmor John could no longer walk up that slight gradient at all!

Brynmor John was 54 years old.  If  Brynmor John was a healthy person, he should not have had a problem walking on that gradient.  The gradient is not a steep gradient.

Up until Brynmor John became an M.E. patient he was able walk up that actual gradient to the main road, if he could not walk up that gradient going to the Main Road,  Brynmor John would not have made the statement:


I just could not get up it!”


Brynmor John should not have had a problem continuing to walk on the property where he lived if the exercise prescription was the proper recommendation.


Was Something Missed?

Brynmor John was advised by his doctor to “Exercise his way back to fitness” as stated in “Magical Medicine: How To Make A Disease Disappear.”

Brynmor John had listened to his doctors advice and attempted to “exercise his way back to fitness” as his doctor advised.

Instead of becoming “Fit,” Brynmor John not only suffered the increase in his abnormal recovery time, he became so weak that he could not dress, he could not tolerate exertion, and he could not walk up the gradient to the Main Road from his house.

We also see no further documentation as far as Brynmor John’s doctor investigating further as to why Brynmor John’s condition was not improving and why Brynmor John could not walk up that gradient.

Brynmor John was still exercising at the House of Commons Gym because he was exercising right before he died, December 15th, 1988.

Brynmor John was also still working as of December 5th which was the day of his last noted contribution to UK Parliament regarding “Environmental Problems.”

Brynmor John was still both working and exercising.

Brynmor John did not improve.

Not only did Brynmor John not improve, Brynmor John suffered the worse complication that one could suffer, Brynmor John went into Cardiac Arrest immediately after he was exercising while exiting the House of Commons Gym.

 

Why did Brynmor John’s doctor not listen?

Malcolm Hooper’s Magical Medicine: How To Make An Illness Disappear” stated that Brynmor John:

“was irritated by the profusion of psychiatric comment.”

The “profusion of psychiatric comment“that Brynmor John was talking about was the intrusion of the “psychiatric lobby” which was led by Professor Simon Wessely and his colleagues known as the “Wessely School.”

The school of thought of  the “profusion of psychiatric comment” or “Wessely School” believes that M.E. is a myth, a psychiatric disorder, or what Professor Wessely believes to be “functional somatic syndrome” or behavioral disorder where the patient has medically unexplained fatigue caused by inappropriate illness beliefs.

Thus, Brynmor John’s doctor did not “hear” Brynmor John’s complaint of symptoms because Brynmor John’s doctor was of the school of the “profusion of psychiatric comment“, better known as the belief of the Wessely School definition of “CFS/ME” which is what the Wessely School classify M.E. as.

The “profusion of psychiatric comment” or “Wessely School” belief for the treatment of “CFS/ME” is psychiatric and their treatment for “CFS/ME” is what is called “CBT” or Cognitive Behavioral Therapy and
“GET” or Graded Exercise Therapy.

The “Wessely School” belief for the treatment of Cognitive Behavioral Therapy is to “cure” the “dysfunctional beliefs” of patients who only “think” they have a non-existent illness called “ME”,

The “Wessely School” belief for the treatment of “GET” or Graded Exercise Therapy was to reverse the change that resulted in deconditioning in patients who avoided activity because the patients had a false belief of illness.

 


A Few More Clues!

 

All of the M.E. patients who are reading this, what do some of our lab results show?

If you know the different items in the lab results,  which of those items can affect the heart?

What can those items do to the heart?

Can you think of another M.E. patient who died of Sudden Cardiac death because that patient wasn’t examined further?

If you know who that M.E. patient is who I am referring to, what was wrong with that M.E. patients heart?

 

 

If you can identify what is being described and asked in the questions above:

-Should Brynmor John’s doctor continued to have allowed Brynmor John to keep exercising “his way back to fitness?”

-Should Brynmor John’s doctor have possibly known what the problem was according to Brynmor John’s symptoms and discontinued  Brynmor John’s exercise prescription to investigate further to confirm?

 

What did Brynmor John’s doctor miss that caused Brynmor John to suffer sudden cardiac death after he exercised in the House of Commons Gym?

??????????

 

Fellow Patients And Others:

If you think you know the answer, please leave it in the comments.

If we the patients are to be effective advocates for this illness,  the complications must be pointed out, not just the symptoms that make this illness unique in comparison to other illnesses.

The discussion should not be “Do M.E. or “CFS” patients die”, the discussion should be, what are the specific complications that M.E. or “CFS” patients die from and why do those complications occur!

I included “CFS” because patients are diagnosed “CFS” or “ME/CFS”  here in the United States.

There is no need to dance around the truth about this and other complications!

M.E. patients have serious and potentially lethal complications and they must be pointed out!

As the complications are discussed,  this information will circulate via the internet and social media that we didn’t have 25 years ago where we could not do that.

Because we as patients could not do that 25 years ago, this illness has gone from the infectious disease department to the psychological propaganda department.

Brynmor John died in 1988 the other patient I pointed about above died 16 years later  because of the same thing which was missed causing Sudden Cardiac Death that I did not state yet.

Do you think Brynmor John and the patient who died 16 years later have been the only two patients who died of  Sudden Cardiac Death because something major was missed because of something that could’ve been very easy to diagnose?

 

Yes, I say “EASY TO DIAGNOSE,” and I shake my head because I was an active R.N. and I knew this and I cant believe that there are many physicians today who do NOT know this!

BeNiceToNurses

 

To Be Continued……..


The whole idea you can take a disease like this and exercise your way to health is foolishness, it is insane.”~Dr. Paul Cheney~

 

“The Other Side Of The Stretcher” (c) 2014

This blog is not for medical advice.
For medical advice, you must speak with your physician!


Follow

Get every new post delivered to your Inbox.

Join 39 other followers