P2P: Don’t Buy the Hype! Protest!

The Other Side Of The Stretcher:

Dont Buy The Hype! Protest!

NIH has done this before!

They did the same to AIDS Patients!

Originally posted on Thoughts About M.E.:

The reason why I will not cooperate with, or participate or engage in, the P2P process is very simple. HHS and NIH have shown time and time again that they do not have ME patients’ interest at heart. This disturbing and indisputable fact has been confirmed again very recently in my FOIA lawsuit regarding documents relating to the IOM contract (the diagnostic equivalent of P2P), in which I won my motion for summary judgment against HHS and NIH in early September with a ruling by the court that the government violated federal law. The government, in turn, lost their motion for a summary judgment against me. HHS’s and NIH’s conduct in this matter has been dilatory, obstructionist and unlawful.

I initially filed my lawsuit pro se (meaning without engaging lawyers) because I was hoping that, when faced with a lawsuit, the government would finally comply with the law. I wanted…

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US District Court: HHS/NIH Violated Federal Law in Response to FOIA Request for IOM Documents

The Other Side Of The Stretcher:

ThankyouJeannette
This is a Major Win For the M.E. Patient Community!
A Big Thanks From All of Us In The M.E. Patient Community To
Patient Advocate Attorney Extraordinare
Jeanette Burmeister For A Job Well Done!!!!
:)

Originally posted on Thoughts About M.E.:

I am pleased to give an update on my FOIA lawsuit:

Yesterday, the United States District Court for the Northern District of California ruled that HHSandNIH(government)violated the Freedom of Information Act (FOIA) when they improperly withheld documents from me in response to my FOIA request regarding HHS’s contract with the Institute of Medicine (IOM) for the study of diagnostic criteria for ME/CFS.

Accordingly, the Court granted my motion for summary judgment and ordered the government “to produce, within 60 days, all documents responsive to [my] request that are not covered by any exemption to FOIA’s disclosure requirements.” [emphasis added] The Court also denied the government’s motion for summary judgment asking for a dismissal of my lawsuit.

I believe that holding HHS and NIH legally responsible for their violation of federal law is a tremendous victory for our patient population. However, since this litigation is ongoing…

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Man-Made AIDS & The Scientific Cover-Up

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AIDS and the Doctors of Death- In other words, these doctors are also the cause of M.E patients not receiving treatment.
Reknown Dr. Anthony Fauci, HIV/AIDS is his baby. He used to keep a roster of patients who were the HIV Negative AIDS patients which are the M.E. or the CDC Construct- “CFS” patients.
Dr Anthony Fauci does not want anyone to know that you do not have to have HIV to have AIDS which a % of M.E or the CDC construct “CFS” patients have.
Dr. Robert Gallo, worked in the same lab as M.E scientist Dr Elaine Defreitas at the Wistar Institute in the 80’s and early 90’s. Dr Elaine Defreitas helped Dr Gallo map out the HTLV virus and Dr Gallo was helping Dr Elaine Defreitas with “CFS” Retroviral research. When Dr Elaine Defreitas was about to make the breakthrough, she was in a car accident where she had to take a early retirement because of her injuries. How convienient was that!
It is also known that Dr Gallo fired Dr Frank Ruscetti because he did not want anyone else to get credit for the HTLV virus discovery.
Dr. Gallo happens to friends with Dr. Fauci- how convienient is that too. It is because of Dr. Fauci, that M.E or CDC “construct” “CFS” has been behind in research over 20 years and also actually does not have any research because M.E/CFS research funding is $5 Million dollar a year thanks to Dr Anthony Fauci who directs all of the research money at NIH, and notice, most of it goes to AIDS.
I do believe NIH has their own Mafia Don!
Gambino Crime Family Boss John Gotti, was called “The Teflon Don”, he was called “The Teflon Don” because they could not get a case stick. But in the end, the Teflon wore out, and John Gotti went to prison! Its only a matter of time that the “Teflon” will wear out at the NIH!

Originally posted on Mission Galactic Freedom:

Man-Made-AIDS-The-Scientific-Cover-Up

Alan Cantwell, MD

There is good reason why the “AIDS is a man-made disease” conspiracy theory refuses to go away. It certainly makes more sense than the official theory claiming AIDS came from Africa where  a hunter in the bush cut himself butchering monkey or chimpanzee meat  sometime  around the 1930s. This supposedly resulted in the introduction  of a primate immunodeficiency virus (now renamed HIV —the human immunodeficiency virus)  into the black African population. From that incident the epidemic purportedly evolved via sex, dirty needles, and urbanization to produce a pandemic in the 1980s  that has killed more that 30 million people.

Over the past thirty years, a few diehard health professionals, including Robert Strecker MD, Leonard G. Horowitz DMD, and this author have provided evidence in videos, books, and Internet reports suggesting that the man-made theory is, in actuality,  the most plausible theory of all. This theory is…

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9 Things You Wish You Could Tell Someone After They Commit Suicide

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I would tell them….. Please don’t go……

Originally posted on Thought Catalog:

1. I wish I could’ve talked to you about how serious your problems were getting. I’m someone who doesn’t let many people into my life, because I know what it feels like to have a part of yourself walk away with someone, even acquaintances. When you open up to someone, they become a part of your story. I wish you would have let me have a bigger role in your story.

2. I wish I could tell you that know what it’s like to wake up and feel like nothing around you is worth going through another day, or that life is completely meaningless. I know that when you’re in that state of mind, it’s hard to really hear the kind words of another person. Maybe if we could have just sat there in silence together, just thinking and waiting for the moment of insight when…

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Karina Hansen: Prisoner of Denmark

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KarinaJusticeFor

 

Karina Hansen: Diagnosed Severe ME in 2008 was forcibly removed from her home, February of 2013, taken to the Hammel Neurocenter in Denmark under the orders of Professor Per Fink for mandatory treatment as a psychiatric patient.
Despite the efforts of Karina’s family, friends, The International ME community, and legal team, Karina still remains a psychiatric patient at the Hammel Neuro Center via the orders of Psychiatrists Nils Balle Christensen and Professor Per Fink.
Nils Balle Christensen and Professor Per Fink do not recognize the medical diagnosis of Myalgic Encephalomyalitis as medical diagnosis but as a “Functional Somatic Disorder.”
Justice For Karina: http://justiceforkarina.webs.com
Hammel Neurocenter: http://www.hospitalsenhedmidt.dk/

Originally posted on valerieeliotsmith:

Many of you will already be aware of the case of Karina Hansen. However, for those of you who are unfamiliar with her situation, this is a short re-cap of the facts as far as we know:

Karina, now aged 25, is a citizen of Denmark, a member state of the European Union. She was diagnosed in 2008 with a severe case of the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Her family cared for her at home until February 2013 when state intervention caused her to be forcibly removed to the Hammel Neurocenter for mandatory treatment as a de facto psychiatric patient. Despite the efforts of her family, friends and the international ME/CFS patient community to secure her release and return home, she has remained there ever since. The British charity Invest in ME has offered advice and assistance to the Danish authorities but has, so far, been ignored.

****************

In the last…

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Global Health: Time to Pay Attention to Chronic Diseases

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NIH Director’s Blog: Time To Pay Attention To Chronic Diseases by Dr. Francis Collins
If you do a search through Dr Collins Blog, you will not find anything on M.E., Myalgic Encephalomyelitis or even the “Construct” “Chronic Fatigue Syndrome/CFS

Originally posted on NIH Director's Blog:

Graph of projected deaths by cause in low income countries

Caption: Projected deaths (in millions) by cause in low-income countries. Note increase in non-communicable diseases (orange).
Credit: Adapted from Beaglehole R, Bonita R. Lancet. 2008 Dec 6;372(9654):1988-96.

Greetings from China. I’m here in Shanghai with other biomedical research leaders for two major meetings. The first one, which is the topic of my blog today, is on global health. So, you might expect there to be a lot of talk about malaria, influenza, MERS-CoV, Ebola virus, sleeping sickness, dengue fever, tuberculosis, HIV/AIDS, and other infectious diseases. And those are most certainly topics of intense interest to NIH and our colleagues around the world. But this particular meeting is about a different kind of global health threat that’s becoming a rapidly growing problem: chronic diseases.

While infectious diseases remain a significant problem in the developing world, cancer, heart disease, obesity, diabetes, and other non-communicable diseases are now among the fastest growing causes…

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One More Update

The Other Side Of The Stretcher:

Love

 

One More Update from Brooke.

Her doctor was able to get hospice care reinstated for her for 60 days.

Today, we live in a time where, being sick is not acceptable, and people who have misunderstood chronic illnesses, there aren’t many medical practitioners who are cut out to care for them.  Not only not cut out to care for them, they have no compassion and pass the patients off as depressed.

Today, it seems as if you don’t have something like cancer or AIDS, your illness doesn’t qualify, as in Brooke’s case, her hospice care was discontinued because she wasn’t “considered to be dying.”  That’s just so awful.

People with chronic illness who are basically living a “living death”, there are no words because I can’t even think of the words because I’m one of those people.  I know I myself will probably die alone, no hospice, no support, nothing.  And I know there is nothing I can do about it. I have come to accept it because unfortunately that’s the way it is.

I ask everyone to pray for peace and comfort for Brooke during this time.

 

Originally posted on Documenting M.E.:

Dear Friends,

Recently there have been a lot of questions in the community about what has happened to me and where I am with things. I am now very near the end of life, and writing posts has become next to impossible, but I wanted to try to get one more out. This post will be written in many parts, and may seem rough around the edges, but it is the best that I can do at this point. I know you will understand.

First, regarding care. My initial reevaluation for hospice care was denied – in part due to misinformation coming from the whole CFS mixup. After this, my doctor agreed to treat me himself, without the aid of nurses since he couldn’t find a way to get any into the home. Things began going downhill so fast, however, that he recently talked the hospice team into readmitting me…

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