Help Wanted: Lyme – AIDS 2.0

Originally posted on BLAB: The Bad [Lyme] Attitude Blog:

The Beginning and the End

Remember when you were a kid, and you had your favorite “sick food?” Mine was toast with butter and honey, but the butter had to be completely melted so the honey could fully penetrate the toasty crevices. Do you have someone to make honey toast for you when you get sick now, as a grown-up?

If you got sick, would someone be there to watch TV with you and tell you, “Nah, you don’t stink at all”? If you stayed sick, would someone be there to take you to doctors’ appointments, pick up your meds from the pharmacy, tidy up your house? If you got really sick, would someone be there to make sure you’re eating, offer to take care of your kids and pets?

What if you were so sick you could no longer work or take care of yourself? Would someone be there…

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267% Price Increase for Ampligen

Originally posted on Thoughts About M.E.:

I just sent the following message regarding Hemispherx’s extraordinary 267% price increase for Ampligen to Dr. Janet Woodcock, the FDA’s Director of the Center for Drug Evaluation and Research:

Dear Dr. Woodcock,

I am writing to you regarding a matter of grave concern for the patients in Hemispherx Biopharma, Inc.’s (“HEB”) AMP-511 open-label clinical trial for Ampligen, a drug highly effective for many ME (or as the FDA calls it “ME/CFS”) patients. I have testified at the Ampligen Advisory Committee meeting and other federal committee meetings in favor of FDA approval of the drug and I remain convinced that this drug should be approved by the FDA without further delay because many patients would benefit from it and because there are no other FDA-approved pharmaceutical interventions for ME.

I have been a study participant for over three years. Last night, I learned through ME Action’s blog (http://www.meaction.net/2015/08/10/ampligen-price-increases-substantially-available-soon-in-europe/) that the…

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Nurse Pleads Guilty to Taking Kickbacks From Drug Maker

“A Connecticut nurse has pleaded guilty to federal charges of accepting $83,000 in kickbacks from Insys Therapeutics, an Arizona drug manufacturer that sells the powerful painkiller Subsys, as prosecutors appear to be intensifying their investigation into the company, which is under scrutiny for its marketing practices.”

Continued *Here*


Anthony Komaroff Agrees with CFS Post-Sepsis Model

Originally posted on BLAB: The Bad [Lyme] Attitude Blog:

Who woulda thought that Anthony Komaroff would spill the beans on Chronic Fatigue Syndrome just two days before CDC’s fiasco of a webinar on the next (non)generation of OspA vaccines? Add to that the CDC’s admission that Lyme is about a “damaged immune system” and the Pope mentioning fungi (see #34) in his bashing of the corporate elite polluters, and it’s been a pretty good week.

First, CDC:

Check out this USA Today article from June 16.

Paul Mead says that there may be immune system damage, a reversal of their usual line of crap, “the immune system is over-active,”since a damaged immune system would be the opposite of autoimmune (working too well):

Meanwhile, the CDC says it isn’t known why a percentage of Lyme sufferers go on to develop PTLDS, but it states on its website that most medical experts believe the culprit is a reaction produced by a…

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P2P: “Pleased to Participate?” Not. Count me out!

The Other Side Of The Stretcher:

P2P: “Pleased to Participate?” Not. Count me out!
Originally posted Oct 21st, 2014

Jeanette’s blog post about why she was one of the many patients who refused to participate in the NIH P2P!

Many thanks to Jeannette!

Originally posted on Thoughts About M.E.:

Here is my open protest letter to Secretary Burwell (with carbon copies to Dr. Collins and Dr. Frieden) regarding the ME/CFS P2P program. As you will note, I am not engaging substantively at all. Instead, I am protesting the process all the way. Anybody should feel free to borrow the language in this letter in whole or in part for their own letter in this ongoing protest campaign, which can be sent to:

Sylvia.Burwell@hhs.gov

cc:

Francis.Collins@nih.hhs.gov

Tomfrieden@cdc.gov

Dear Secretary Burwell,

AHRQ has asked for public comments on the draft “evidence review” report prepared for the agency as part of the NIH-driven ME/CFS Pathways to Prevention (“P2P”) program. I am one of many patients who refuse to participate in the commenting process. Count me out!

In other words, let me stress, for the avoidance of any doubt, that this open letter is in no way to be construed as participation in…

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Calling All Foreign Press

The Other Side Of The Stretcher:

Calling All Foreign Press
#occupytheusdoj #2015

Originally posted on BLAB: The Bad [Lyme] Attitude Blog:

FOR IMMEDIATE RELEASE: May 17, 2015

Washington, D.C., May 17, 2015: Medical abuse-victims’ rights group Society for Advancement of Scientific Hermeneutics (SASH), announces its Occupy the USDOJ protest beginning June 1, in Washington, D.C. This Occupy movement, led by a group of chronically ill and disabled activists, is a direct result of the medical abuse they say has been inflicted upon them by government and the medical/pharmaceutical corporate complex.

The Occupy leaders state in their criminal charge sheets that there is a common disease mechanism linking Lyme disease, ME/CFS, Gulf War Illness, Fibromyalgia and Autism. Furthermore, to expose such mechanism would reveal rampant fraud and racketeering within the CDC and other entities, as well as the cause of the autism pandemic. All abused patient groups are encouraged to join this peaceful but passionate protest on the steps of USDOJ, 950 Pennsylvania Ave. NW, Washington, DC, USA, from June 1 until…

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This Week in #Vaccine News

The Other Side Of The Stretcher:

This Week’s Vaccine News!

Originally posted on BLAB: The Bad [Lyme] Attitude Blog:

I just can’t let these two news items go by without commenting.

1. By now we’ve all heard about the babies dying in Mexico, right?

“Mexico’s public health system has suspended infant vaccines and begun an investigation after two babies died and 29 became ill in an impoverished community in southern Mexico.
The Mexican institute for social security says six of the 29 babies are in grave condition after receiving vaccinations for tuberculosis, rotavirus and hepatitis B.
The cause of the adverse reactions is not known, the institute said Sunday.
It had stopped vaccines across the country on Saturday.
Father Marcelo Perez, a Catholic priest, said families of the babies said they became sick within hours.
The adverse reactions began on Friday and the babies were taken to a hospital in Simojovel, Chiapas, where 93% of the people live in poverty, according to government statistics.”


^^^That was the…

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