Monthly Archives: January 2015

US Neuroscientist Says Exercise is a Noxious Stimulus That Worsens Symptoms of ME/CFS

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Our friend Penny Swift wrote another excellent piece in response to the inaccurate reporting via the U.K press about exercise and M.E. orchestrated by U.K. psychiatrists.

Penny features the work of Dr. Mark VanNess of the University of the University of the Pacific in this particular article.

Dr. Mark VanNess’s area of expertise is the post-exertional, immunological, autonomic, and neuroendocrine responses in women with M.E.

Click HERE to read “US Neuroscientist Says Exercise is a Noxious Stimulus That Worsens Symptoms of ME/CFS” and don’t forget to leave a comment for Penny! 🙂

 

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Objection: Hearsay!

 

 

Hearsay

 

The Other Side of The Stretcher’s Response to The Inaccurate Reporting of the UK Media in Regards to exercise and Myalgic Encephalomyelitis!

I wrote this blog post last year.
It applies to the current inaccurate reporting of the UK media in regards to M.E which amounts to nothing other than “Hearsay.”

In other words….

There is a “Hearsay Medicine Practitioner” epidemic going on the UK and in other places as well!

“Hearsay Medicine Practitioner”= Dangerous to YOUR health!

 

 

The Other Side Of The Stretcher

What is “Hearsay Medicine”?

Actually,

“Hearsay Medicine” is a Copyright of “The Side of The Stretcher,” aka Me :).  I figure I should do that because blogging isn’t like it was 10 years ago.  I notice the practice of “plagiarism” is not just common, it is rampant!  You must copyright every one your ideas!

If you are familiar with the term “Hearsay” which someone with a legal background would be familiar with, then you may have an idea what “Hearsay Medicine” could be.  If you don’t, read on and find out, because there are doctors who practice “Hearsay” medicine and one day you may be in a situation where you may just need to know this if you have a “politically incorrect” illness.

From the Nurse Point Of View!

As I have said in my previous blog posts, my blog posts are written  from an RN point of view for the benefit of the patients because…

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Dr. VanNess Response to Inaccurate UK Reporting in Re M.E. Compliments of Joan Mcparland

DrVanNess

 

 

Permission has been granted to share this letter below, a highly respected and highly educated response on the preposterous idea that ME patients remain severely, physically debilitated due to an irrational ‘fear of exercise.’

Due to recent inaccurate media reporting of a misleading study, performed by some notorious UK psychiatrists, I asked for the opinion of a world leading expert in the area of exercise science.

THANK YOU for your support Professor Mark VanNess Sr. VanNess! Letter below.

The lives of patients could be so dramatically improved and even saved if some very powerful psychiatrists would just end their agenda to literally crucify us and sit down to study the biomedical evidence. This post contains just one example, there are thousands more.

In February 2014 we provided a platform in Stormont for the presentation of the groundbreaking, scientific findings from the Workwell Foundation in CA.
The presentation included scientific evidence for measuring reduced functional capacity and post-exertional fatigue following physical activity and which are hallmark symptoms for patients suffering from M.E. with 95.1% ACCURACY

http://ptjournal.apta.org/content/early/2013/06/26/ptj.20110368.short

and

http://www.workwellfoundation.org/wp-content/uploads/2013/08/Press-Release-2-day-CPET-Final1.pdf

“Dear Joan,

I was saddened to see the press releases regarding the ME/CFS studies from Kings College London. It seems to me they’ve once again missed important nuances of the disease. Nearly all ME/CFS sufferers would either avoid or drop out of any experiment that employed exercise as a treatment because they know it exacerbates symptoms. The remaining subjects would either be very high functioning or consist of fatigued individuals that were incorrectly diagnosed as ME/CFS. Our studies clearly show that dynamic exercise like walking or jogging exacerbates symptoms associated with ME/CFS.

Fear and avoidance of what worsens symptoms is a natural defense mechanism against a harmful stimulus. In fact, many researchers here in the U.S. utilize graded aerobic exercise as a tool to worsen and amplify ME/CFS symptoms – not as a treatment meant to be beneficial. The therapeutic interventions we use are meant to improve quality of life for ME/CFS patients. These interventions focus primarily on strengthening muscles and improving range of motion; activities that get energy from normally functioning anaerobic metabolic mechanisms rather than impaired aerobic energy pathways. We even provide tools like heart rate monitors to help patients avoid significant aerobic exertion.

Fear of exercise is an understandable response in ME/CFS. For a patient with ME/CFS the fear of exercise is a reasonable, knowledgeable, and learned response to a noxious stimulus. If ME/CFS patients could exercise away their symptoms they most certainly would, regardless of the pain. But that is not the case. Our exercise physiologists carefully avoid aerobic exercise (which worsens the pathologies) and focus activity programs that utilize intact metabolic pathways with strength training and recumbent stretching (that help alleviate symptoms). These exercise recommendations are consistent with our understanding of ME/CFS pathology.

We would all hope that ME/CFS was viewed with attention given to immunological, metabolic, cardiovascular and neuroendocrinological dysfunction that has been demonstrated with previous research.

Good luck to you and your organization as you help us all accurately portray this illness.

Sincerely,
J. Mark VanNess, Ph.D.
Professor; Departments of Health and Exercise Science and Bioengineering
University of the Pacific
Stockton, California, USA”

DVDs of the full professional’s education event in Stormont Buildings, Belfast are available from N&M support group or Professor VanNess single presentation may be viewed at this link from the Bristol event..

http://youtu.be/q_cnva7zyKM

“Professor Mark VanNess received his doctorate in neuroscience from Florida State University in 1997 and did post-doctoral work in the department of pharmacology at the University of Texas Health Science Center at San Antonio. He teaches classes at the University of the Pacific in the College of the Pacific and College of Engineering in the areas of exercise science, nutrition and biology. He began working on CFS in 1999. His main research interest is on the role of the autonomic nervous system in immune dysfunction. He has a particular interest in the mechanisms that produce post-exertional malaise in women with CFS, especially as they contribute to physical and cognitive dysfunction.”

 

 

Please visit Sally @ Just ME for further commentary in regards to
Prof. VanNess on recent press reports.”

“The Other Side Of The Stretcher” (c) 2015

This blog is not for medical advice.
For medical advice, you must speak with your physician!

Trolls

“Plagiarizers”

Credit is given for images in this blog.

If you don’t see credit and you see your image,

please leave a note in the comments so credit can be given.

Thankyou!


The Story the Media Don’t Tell…

What The Media Does Not Tell You!

sciencevsantiscience

I write with regards to various media articles published on 14th January 2015 referring to Chronic Fatigue Syndrome and exercise. Before you decide not to read the rest of this blog, I urge to change your mind and read the real story about Chronic Fatigue Syndrome (Myalgic Encephalomyelitis) because there is more than one side to the story. I am aware the printed articles stemmed from a press release from the Science and Media Center so I have no gripes with individual reporters, they are just doing their job.

Firstly, one mistake all media seem to make, not just one isolated journalist, is that Chronic Fatigue Syndrome is merely a case of “fatigue”. Please also bear in mind that the Daily Mail published this article back in 2010:

http://www.dailymail.co.uk/health/article-1093016/Ive-seen-patients-paralysed-dying-Aids-victims-starving-children–Ive-seen-ill-Lynn.html

The correct name for CFS is Myalgic Encephalomyelitis which is classed as a neurological disease by the World Health Organization…

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M.E./CFS/Fibromyalgia/Lyme/ Autism/GWS: Post-Sepsis Syndrome

Did You Know This?
Call Dr Anthony Fauci at the NIH and ask him about it!

One problem all of us abused groups have is that we all tend to focus on our own personal narrative, rather than look at what we have in common. As a victim of chronic Lyme abuse, if I say anything about Myalgic Encephalomyelitis (M.E.) I am immediately perceived as attacking the M.E. crowd. Fingers shoot into the ears and the “la la la la las” shoot out of the mouths. I have news for you: the same thing happens in my Lyme groups, Lymie on Lymie! Very few people want to hear what I (along withActionLymeandCrymeDisease.com) am saying. I dare you, right now, to remove fingers from ears and listen up, because the science tells us that what unites us all is Chronic Sepsis or Post-sepsis Syndrome.

Take a look at this graphic. What it illustrates is that TLR2/1 agonists, at the center of all medically…

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More UK M.E Disinformation Campaign Propaganda!

The British Journal is participating in this one as well.

“Tackling fears about exercise is important for ME treatment, analysis indicates.”

This field needs scientists, not psychiatrists who have no science background at all and are harming the patients. Patients have died because of incorrect UK criteria and manipulation of the data for M.E. or Myalgic Encephalomyelitis.

Patients have died because of this fraudulent and none other than criminal criteria!

Brynmor John was one of them:

“GET” and The House Of Commons Gym


M.E. Research SLAMS Lancet Psychiatry Report Advocating Exercise for Chronic Fatigue Syndrome Sufferers

By Penny Swift

“ME Research UK has slammed an analytical report published in the latest The Lancet Psychiatry that claims ME/CFS patients have “fear avoidance beliefs” that exercise will exacerbate their symptoms. This, the report maintains, is a major negative factor that perpetuates both fatigue and disability in Chronic Fatigue Syndrome (CFS) sufferers.”

Continued *Here*