The IOM: Death by Acronym and Epic Media Fail

I have always said “symptoms are not acronyms!”
People NEED to wake up!

valerieeliotsmith

Background

The illness Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has been documented since an occurrence in Los Angeles, California in 1934, followed by countless other similar events. A major outbreak at the Royal Free Hospital in London, UK in 1955 led to the coining of the term “myalgic encephalomyelitis” (ME).

In 1988 the term “chronic fatigue syndrome” (CFS) was created in the US; this generally replaced ME in many countries, including the UK. However, the trivialising nature of the name CFS was deeply unpopular with most patients so the terms have frequently – but misleadingly – become conflated, either to ME/CFS or CFS/ME. I have lived with ME since 1981. There is still no cure nor any approved treatment. It is a global illness with a long and troubled history everywhere.

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The latest chapter

In 2013 the Institute of Medicine (IOM) was tasked by the US Department of Health and Human Services (HHS) with researching and…

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About The Other Side Of The Stretcher

Nurse turned patient, but not by choice. I was became a Registered Nurse in 1985 when I was 21 years old. That career was cut short the end of 1994 when I was unable to work anymore because of the illness M.E. or Myalgic Encephalomyelitis. I have 3 adult children including twins, A daughter and 2 sons. View all posts by The Other Side Of The Stretcher

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