P2P: “Pleased to Participate?” Not. Count me out!
Originally posted Oct 21st, 2014
Jeanette’s blog post about why she was one of the many patients who refused to participate in the NIH P2P!
Many thanks to Jeannette!
Here is my open protest letter to Secretary Burwell (with carbon copies to Dr. Collins and Dr. Frieden) regarding the ME/CFS P2P program. As you will note, I am not engaging substantively at all. Instead, I am protesting the process all the way. Anybody should feel free to borrow the language in this letter in whole or in part for their own letter in this ongoing protest campaign, which can be sent to:
Dear Secretary Burwell,
AHRQ has asked for public comments on the draft “evidence review” report prepared for the agency as part of the NIH-driven ME/CFS Pathways to Prevention (“P2P”) program. I am one of many patients who refuse to participate in the commenting process. Count me out!
In other words, let me stress, for the avoidance of any doubt, that this open letter is in no way to be construed as participation in…
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