Monthly Archives: August 2015

Help Wanted: Lyme – AIDS 2.0

The Beginning and the End

Remember when you were a kid, and you had your favorite “sick food?” Mine was toast with butter and honey, but the butter had to be completely melted so the honey could fully penetrate the toasty crevices. Do you have someone to make honey toast for you when you get sick now, as a grown-up?

If you got sick, would someone be there to watch TV with you and tell you, “Nah, you don’t stink at all”? If you stayed sick, would someone be there to take you to doctors’ appointments, pick up your meds from the pharmacy, tidy up your house? If you got really sick, would someone be there to make sure you’re eating, offer to take care of your kids and pets?

What if you were so sick you could no longer work or take care of yourself? Would someone be there…

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267% Price Increase for Ampligen

267% ??????

Thoughts About M.E.

I just sent the following message regarding Hemispherx’s extraordinary 267% price increase for Ampligen to Dr. Janet Woodcock, the FDA’s Director of the Center for Drug Evaluation and Research:

Dear Dr. Woodcock,

I am writing to you regarding a matter of grave concern for the patients in Hemispherx Biopharma, Inc.’s (“HEB”) AMP-511 open-label clinical trial for Ampligen, a drug highly effective for many ME (or as the FDA calls it “ME/CFS”) patients. I have testified at the Ampligen Advisory Committee meeting and other federal committee meetings in favor of FDA approval of the drug and I remain convinced that this drug should be approved by the FDA without further delay because many patients would benefit from it and because there are no other FDA-approved pharmaceutical interventions for ME.

I have been a study participant for over three years. Last night, I learned through ME Action’s blog (http://www.meaction.net/2015/08/10/ampligen-price-increases-substantially-available-soon-in-europe/) that the…

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