Monthly Archives: November 2015

“Follow The Money”

“There is a statement among crime investigators of white-collar crime: If you wish to understand what is going on,

‘Follow the money'”

#PACEtrial #pwme #MEcfs #MyalgicE #SevereME

The Other Side Of The Stretcher

Follow the Money 4

Dr. Byron Hyde’s reaction as a reply to the Lancet Psychology re M.E. report re M.E. and exercise compliments of M.E. patient advocate Michael Evison: 

“Regarding the Lancet paper, you have to understand who these people are.

It is my understanding that they are primarily in-hospital or in-University psychiatrists, physicians and allied specialists, who to the best of my knowledge have opinions, which will get them or their departments national grants. To the best of my knowledge they toe the financial line for political rather than medical grounds, which is very smart if you wish funding.

Their views to my opinion are dangerous in so much as the mere diagnosis of CFS or M.E. in the UK is sufficient to get patients hospitalized in psychiatric hospitals and the keys thrown away.

Unfortunately I have seen this among UK patients who I have examined, tested or had tested and even brought…

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Queen Mary University of London to appeal Information Commissioner’s decision on disclosure of PACE Trial data



I have lived with the illness myalgic encephalomyelitis (ME) for nearly 35 years. The condition is also (misleadingly) known as “Chronic Fatigue Syndrome” and is therefore often referred to as “ME/CFS” or “CFS/ME”. For more information see “About“.

I have previously written about the controversial PACE Trial (Principal Investigator: Professor Peter White of St Bartholomew’s Hospital in London) and its highly questionable effects on the treatment of patients – see PACE vs FOIA: Access Denied.

The current case

Ever since the results of this £5 million (US$8m) publicly-funded trial were published by The Lancet  in 2011, patients have been attempting to gain access to the trial data as the results were spun in a surprisingly positive light. In 2014, I made a request under the Freedom of Information Act (FOIA) to ascertain the number of requests which had been made in total. The…

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Department of Labor Proposes Lowering Bar for ERISA Disability Claims, Requests Public Comments

Thoughts About M.E.

I am happy to report a rare positive development for disability claimants, one that is important to get behind. As most of you know, the rules under the Employee Retirement Income Security Act (“ERISA”) regarding employees’ long-term disability (“LTD”) claims are abysmal; the deck is clearly stacked against claimants. It seems, that the U.S. Department of Labor (“DOL”) has taken notice and is attempting to level the playing field somewhat. On Wednesday, November 18, 2015, the DOL published proposed regulations, which, if and when adopted, would provide employees who claim disability benefits under their LTD plan with additional procedural protections and safeguards that would afford some claimants benefits that would otherwise have been improperly denied, as happens all too often. I will discuss the proposal in more detail below, but here is the bottom line: While there still won’t be punitive damages—in my opinion, the most needed change under…

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Man Down. Millions More Going Down from PTSD/GWI/CFIDS.

VLG on Valcyte Blog

If I only knew 10 years ago what I know today, so many  lives would be changed and more might be saved.  

The shock and awe of watching somebody you love get eaten up by a  mystery illness is overwhelming and  frightening.

We train so hard to be the toughest, to know how and why to be the best. When something unknown explodes in life and there are no tools to put the pieces back together, what do you do? How can one do their best with zero?

During the past decade, we learned how to create our own tools and survive. At this point in Blake’s recovery, we could easily lace up our boots, stand  straight and never look back at this issue.  Except for one thing: the man down was my son and the millions more falling are children and soldiers/warriors. We don’t leave anyone behind, that is unacceptable to us. We walk…

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PACE and (k) to an end?


The PACE trial  is on everyone’s lips! This study,  in March 2011 in The Lancet published, is one of the largest and most expensive treatment studies for “Chronic Fatigue Syndrome”. Guided by psychiatrist Peter White, a supporter of the British Wessely School, * came the study of his time to the conclusion Cognitive behavioral therapy (CBT) and Graded Exercise Therapy (GET), combined with a specialist care, are the most promising therapies for the treatment of ” Chronic Fatigue Syndrome “.Both therapies are both Adaptive Pacing Therapy (APT), in addition specialist care, as well as a specialist care without adjunctive therapy (SMC) superior.

Read Full Article *HERE*

Pharma Biggie Hit With $125M Penalty For Illegal Kickbacks To Doctors, Falsified Insurance Forms



From the Consumerist:


A subsidiary of multibillion-dollar international pharmaceuticals company Allergan has agreed to plead guilty to a felony charge of healthcare fraud and pay $125 million to close the books on criminal and civil liability claims tied to the subsidiary’s illegal marketing activities for seven different name-brand prescription drugs.


Read Full Article *HERE*