Author Archives: The Other Side Of The Stretcher

About The Other Side Of The Stretcher

Nurse turned patient, but not by choice. I was became a Registered Nurse in 1985 when I was 21 years old. That career was cut short the end of 1994 when I was unable to work anymore because of the illness M.E. or Myalgic Encephalomyelitis. I have 3 adult children including twins, A daughter and 2 sons.

Farewell Dr. DeLuca…

Three years ago this March of 2018 was my last appointment with my long time doctor, Dr. Joseph DeLuca. I had a feeling it was coming because he was almost 81, but when he said it, it hit me very hard especially when I found out the reason why….

It was fall of 1996 when I first met Dr. DeLuca during my first appointment. I then continued to see Dr. DeLuca every 3 months for 22 years…..

Dr. DeLuca was the doctor in the Central Florida area who patient had sough care for diseases such as M.E,. Fibromyalgia, CFIDS, Chronic pain, and any chronic illness doctors did not want to treat.

Dr. DeLuca was my wonderful doctor for 22 years. Dr DeLuca was probably the most compassionate doctor that I had ever met. Dr DeLuca worked with you like a team, he was also an “outside of the box” thinker as well as very honest. So honest that he even said “You know Chronic Fatigue Syndrome is a sham, don’t you?”

The previous year, Dr. DeLuca had said that the lease for his office would be up June of 2018, I had a feeling he was going to say he was going to retire, I had that feeling for a couple of years. During this last appointment I had asked him if he found a new office or if he was going to retire. Dr. DeLuca said that he was going to have to retire and that his secretary Jodi would have a letter at the desk explaining why.

Dr. Deluca had to retire, not because he was going to be 81, is because he was diagnosed with Bladder Cancer the end of 2016, he went through 8 months of chemotherapy which did not work Dr DeLuca then had surgery to remove his bladder which was done at the Moffit Cancer center in Tampa during a 6 hour operation. Dr Deluca’s doctors want him to spend the time in the months following the surgery convalescing.

I am going to miss Dr. Deluca, he was like family, I cried as I was leaving his office

Dr. Deluca planned to spend his time writing childrens books under the pen name “Dr Joe”. Dr. DeLuca’s first book that came out soon after is called “It’s Fun To Be Kind”.

The good news is that Dr. DeLuca recovered from the cancer!

God bless Dr. Deluca!! ❤

“The Other Side Of The Stretcher” (c) 2021

This blog is not for medical advice.
For medical advice, you must speak with your physician!


Left Turn!


Hello Reader!


I know, it has been a while.  I have been on an interesting journey!

Last year, my 28 year chronic illness journey sort of took a left turn off of the highway last year to a very unexpected improvement that I still don’t know what to make of it!

I sort of don’t know what hit me!

I had no idea that a test I had in 1996, was a result that had been causing all of the misery for all of these years! This has been a huge surprise!

After 28 years, I have an improved quality of life which I stumbled on unexpectedly starting with that visit to the cardiologist last year!

I still do not know what to make of this because of all of those years of such a terrible quality of life and actually waiting to die as well as making plans along the way to possibly end it sooner!

Thank all of you who have stopped by to read what I have written previously! I do appreciate you so much!

As you can see, I was really a cranky patient tired suffering with chronic illness for years as well as watching all of my fellow friends and patients suffer because of lack of treatment related to the illness criteria and incorrect information given to providers as far as treatment and all of us patients having to be “our own researchers” telling our doctors what we need and how to treat us!

I am not cured, but have a better quality of life! I hope some of you can find this as well as it may not be over yet!

So stay tuned! I will be back soon!


“The Other Side Of The Stretcher” (c) 2019

This blog is not for medical advice. For medical advice, you must speak with your physician!

Credit is given for images and also information in this blog by either google images or the creator of the image or source of information.

If you don’t see credit and you see your image or information,

please leave a note in the comments so credit can be given.




Victorian Lady

~Photo Compliments Of Google Images~

Hello M.E friends, people, astroturfs,  etc..

Every so often I do a blog post.
I’m not really a writer, the only time I do a blog post is when
I hope to point something out because of my knowledge of
being an active R.N. almost 10 years before I had to stop working
because of M.E 23 years ago!
From what I can see, people think I do not know what i’m talking about!
I did 3 other blogs on this subject and very few people paid attention.  I kept hearing my PEM, my PEM, the doctor doesn’t believe my PEM!

Friends, listen to me, everytime you say “Malaise,” as in “PEM”, you
validate Ed Shorter’s Victorian Woman description of this illness we suffer from.

Everytime you say Malaise”, as in “PEM”, you validate the Late Steve Straus NIH idiopathic fatigue illness!

Do you suffer from the Ed Shorter version or do you suffer from M.E?

What does the name Ed Shorter mean to you?

Do you suffer from the Steve Straus NIH idiopathic fatigue illness or do you suffer from M.E.?

What does the name Steve Straus mean to you?

Are you an  M.E. patient or are you a fool? 

Because that’s what CDC and NIH have made all of the M.E. patients look like!

See what I mean!!!

Am I making sense!

If you suffer from the Ed Shorter version then keep on saying my “PEM” is acting up!  

If you suffer from the Steve Straus idiopathic fatigue illness then keep on saying my “PEM” is acting up!

If you suffer from M.E. then by all means, do not use the word “Malaise” because
the symptom you suffer from, the crash, relapse of symptoms, exacerbation of
symptoms. muscular and neurological fatigabiity as noted in Ramsay’s Definition of M.E is not “Malaise”.

The word “Malaise” insults you as an M.E patient.
The word “Malaise” invalidates you as an M.E patient.

The word “Malaise” quite frankly makes you look like a fool compliments of the NIH and the CDC!

The word “Malaise” is not the symptom you suffer from!

I don’t have to prove this, any medical dictionary will tell you what the
word “Malaise” means and it has nothing to do with M.E.

What does the word malaise mean?


 (mă-lāz′, -lĕz′)


Now, is that your symptom you suffer after activity or exertion?

I didn’t think so!

I have written 3 blogs about the word “Malaise” starting in 2014, and very few people paid attention because they think Anne was “just a nurse” and “doesn’t know what the hell she is talking about.”

I have seen medical forums and blogs where medical people are laughing at
us (or I should say “Fibromyalgia” patients, they refer to us as “Fibromyalgia” patients and not M.E. patients because they are not taught M.E. in the medical schools  here in the United States) because of that word “Malaise”. 

Its terrible!

 I have even seen a new term going around the M.E. community on the social media called “Super Malaise” that probably came from an astroturf forum.

My friends, there is no such thing, word, or medical terminology as “Super Malaise” so don’t say that one either!

Quite frankly, when I hear that word “Malaise”, I get agita!

Agita is an Italian slang word for upset stomach;


My friends, if you want to get it right, the whole thing has to be right including
the name of the key symptom of the illness you suffer if you have M.E.!

Not the Ed Shorter Version
Not the late Steve Straus NIH version,

But A. Melvin Ramsay version!

I have a feeling I have wasted my time again and most will say,
Anne was just a nurse and doesn’t know what the hell she is talking about.

My friends, one day, if we see the end of this nightmare, and actually have a
correct illness criteria with a correct name, using correct medical terminology,
and treatment to make us functional to where we could actually work…..
if we are actually alive to see this….
you may just thank me and say
Anne, you were right, the whole package needs to be correct!

So until then, don’t say it. 






“The Other Side Of The Stretcher” (c) 2017

This blog is not for medical advice.
For medical advice, you must speak with your physician!



Credit is given for images and also information in this blog by either google images or the creator of the image or source of information.

If you don’t see credit and you see your image or information,

please leave a note in the comments so credit can be given.

If you are “offended” by my posts, click the “X” on the top right of the browser page!


“You’re young, healthy, thin – and nothing’s wrong with your heart”

Heart Sisters

Elissa and her family              Elissa and her family

Elissa is a busy 32-year old professional violinist, a mother of three, and a violin teacher who also teaches part-time at her local university. Last year, the northern Utah resident began experiencing unusual symptoms that seemed to be heart-related: chest pain, shortness of breath and crushing fatigue.

These symptoms were so alarming that she knew she needed to seek medical help. See if you can spot the red flag as she tells her story . . .

View original post 1,233 more words

Case report: Alison Hunter

A Sample Day In The World Of Chronic Fatigue Syndrome

Johnny Nowhere’s “A Sample Day In The World of Chronic Fatigue Syndrome”

Captain's Blog; Stardate: 2023

Successfully dragging myself from the bed at 6:58, I’d gotten dressed. As I sat there resting afterward, I found myself mulling over the discussion that I’d had with five new friends that I had discovered on Twitter the day before.

A lively exchange ensued, an we typed freely as if we’d known one another for years, and in a way – we had. We all suffer through the same relative hell. I can really connect with someone who speaks my language. No one else does.

“I need to get in there to try and start writing while my brain is fresh.” I told myself.


‘Fresh’ is a relative term these days. I knew that by 11:30 – which in normality, would’ve been my “wide awake and running on all eight cylinders” time – I would be approaching worthlessness. On a good day, I might even be able to stave…

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How To Make Sure An Invisible Disease Stays That Way

Yes, this is actually being done!

“Cooking The Books” and Margaret Williams 2016 Letter Re PACE Trial



“Cooking The Books” and Margaret Williams 9/2016 letter “PROOF POSITIVE ? (REVISITED)” on the PACE Trial


Basically, Margaret Williams points out more details in how the PACE Team “Cooked The Books” and with their own money to boot!!!!


How stupid can one be- they are stupid crooks that’s why!


I noticed, everyone spends years on debating “scientific” data. If everyone would look at how the “books are being cooked”, we would solve these matters sooner!




Stop being “politically correct” and worrying if your insulting some “supposed” “top” guy at a “supposed” research institution.




Here are a few examples in the letter that is in the link below:



“Facts to be considered:


1. Peter White has used his own money, as well charitable money and public money, in order to lobby support for his belief that ME/CFS is a psycho-behavioural disorder that can be overcome through “cognitive restructuring” and graded aerobic exercise


2. he has egregiously used large sums of public money (£250,000) to prevent the disclosure of data that would falsify his belief


3. for nearly 30 years, he has ignored evidence that disproves his belief, including evidence from his own trials


4. he has failed to correct errors of fact after being alerted to them


5. he has consistently failed to disclose significant financial, institutional and ideological conflicts of interest


6. he has been in breach of his NHS contractual obligations in that he has persistently ignored mandatory directives and has wilfully encouraged other clinicians to do the same


7. as a consequence of his actions:


-money which should have been used for biomedical research into the aetiology of ME/CFS has been diverted to fund studies into therapies which were already known to be ineffective and even harmful


– patients have been stigmatised as sociopaths and malingerers who refuse to accept they have a behavioural disorder,

– patients have been denied financial support from private insurers for whom Peter White and his colleagues work,

(for example, he was Chief Medical Officer for the giant re-insurer Swiss Re and was also CMO to Scottish Provident),

-and from the Department for Work and Pensions (where he was lead advisor on “CFS/ME”

-and was a prominent member of the group who re-wrote the chapter on “CFS/ME” in the DWP’s Disability Handbook used by Examining Medical Practitioners,

-by DWP decision-makers and by members of the Appeals Services Tribunals);

-he also works for the US Centres for Disease Control, and for defendants in legal actions (BMC Health Services Research 2003:3:25)

– patients with ME/CFS have been wrongfully sectioned and detained under the Mental Health Act

– clinicians who oppose his views about ME/CFS have been sanctioned by the General Medical Council and prevented from working.”





Unfortunately we have gangsters in our field, and there are more, all you have to do is look around and pay attention!


Crooks, gangsters, medical researchers included, etc.. always leave a paper trail and most of it is online now.



Before you donate your money to research, do your own research to see where the money is going!



Hopefully more people start paying attention to these details!




Thankyou Margaret Williams for another awesome piece of investigation!…Margaret Williams 2016 Letter



R. (2003). Cook The Books. Retrieved September 22, 2016, from 


“The Other Side Of The Stretcher” (c) 2016

This blog is not for medical advice.
For medical advice, you must speak with your physician!



Credit is given for images and also information in this blog by either google images or the creator of the image or source of information.

If you don’t see credit and you see your image or information,

please leave a note in the comments so credit can be given.

If you are “offended” by my posts, click the “X” on the top right of the browser page!


The #CoyneEffect: Is the ME Community Stepping Up or Backing Down?

Thankyou Jeannette!!!!

“Never be bullied into silence. Never allow yourself to be made a victim. Accept no one’s definition of your life, but define yourself.” – Tim Fields

Thoughts About M.E.

I have received a number of messages from members of the community inquiring about my absence from ME advocacy and about my health. I deeply appreciate the concerns and thoughtfulness. James David Chapman recently tweeted:


I posted a series of tweets in reply to James, which are reproduced below, because the tweets should be read in succession, as each builds on the prior ones. This, obviously, scratches only the surface of the effects on the community of Coyne’s rampage against ME advocates. But I am not well enough to write a blog post fleshing out the topics of my tweets.

I apologize for the incomplete list of those who have been targeted by Coyne, by public or private attacks or threats or by being aggressively blocked on social media. Louise Reed was one of the targets of Coyne’s vicious cyberbullying who is not mentioned below because I didn’t have enough…

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Why The NIH Pathways To Prevention Systematic Review For M.E. and CFS Is Negligent!

The Other Side Of The Stretcher

Why The NIH Pathways To Prevention Systematic Review For M.E. and CFS Is Negligent!

An Explanation!

First I want to say, I became an Registered Nurse in 1985. So my point of view is not of a patient, it is as of an R.N.

When I decided to take a look at the Pathways to Prevention Systematic Review for M.E. I saw right away that it was clearly negligent and harmful to M.E. patients.

I then thought the medical people who have this illness need to start speaking up about the negligence we have witnessed the last 20+ years. What I wrote below is also part of the letters that I also have written Beth Collins Sharpe AHRQ, and Dr. Francis Collins.

The authors who were paid to write the NIH Pathways To Prevention (P2P) Systematic For M.E. obviously did not have M.E. expertise, because they wrote a negligent document recommending unsafe non…

View original post 1,812 more words