Graded Exercise Therapy and The House Of Commons Gym
In Memory Of M.E. Patient
18 April 1934 – 13 December 1988
Compliments of Flying Officer Pam Gerrity
From The Nurse Point of View!
I will point out again like I said in my previous blog posts, i’m coming from an R.N. point of view for the benefit of the patients because I was an active R.N. until I was no longer able to work because of M.E.
I actually couldn’t respond from a patient point of view because I would lose focus on the subject, and I would end up sounding more like an angry patient than a nurse who is very disappointed because of the lack of the standard of patient care in regards to this illness.
Review Of The Facts!
According to Malcolm Hooper’s “Magical Medicine: How To Make A Disease Disappear:”
“On 13th December 1988 Brynmor John MP died from ME/CFS. His experience of the illness was all too familiar:
‘Though there is only a slight gradient from our house to the main road, it could have been the North face of the Eiger. I just could not get up it’. -Brynmor John
He found himself unable to dress; the slightest exertion exhausted him and it took days to regain his strength.
He was irritated by the profusion of psychiatric comment and was trying to ensure better understanding of ME/CFS.
Brynmor John suddenly collapsed and died as he was leaving the House of Commons gym after having been advised to exercise back to fitness.”
Brynmor John could no longer walk on that slight gradient from his house to the main road, as he stated
“I could just not get up it.”
Prior to becoming ill Brynmor John was able walk up that gradient, otherwise he wouldn’t of made that statement.
Brynmor John was to weak to put his clothes on and he could no longer tolerate exertion.
Brynmor John also suffered the abnormal recovery time to the slightest exertion. as “it took days to regain his strength.”
Prior to becoming ill, Brynmor John did not have a problem dressing before he became ill nor did the slightest exertion exhaust him, otherwise that would not have been noted as well.
Remember, Brynmor John was only 54 years old. A healthy 54 year old man or woman would not have a problem walking up a slight gradient, would not have a problem dressing, nor have a problem tolerating exertion.
“Abnormal Recovery Time” is expected as we know in patients with M.E. after exertion.
Abnormal Recovery Time
Abnormal recovery time was already a known symptom of M.E. or Myalgic Encephalomyelitis in 1988.
The 1986 Ramsay Definition for Myalgic Encephalomyelitis Compliments of NAME-US.org Stated:
“Neurological disturbance – an unpredictable state of central nervous system exhaustion following mental or physical exertion which may be delayed and require several days for recovery; an unique neuro-endocrine profile which differs from depression in that the hypothalamic/pituitary/adrenal response to stress is deficient; dysfunction of the autonomic and sensory nervous systems; cognitive problems.”
Brynmor John was suffering other symptoms in addition to the abnormal recovery time!
“Not A ‘Seasoned Veteran'”
“Magical Medicine: How To Make A Disease Disappear stated that Brynmor John
“was trying to ensure better understanding of ME/CFS,”
which meant he was a newer patient.
Brynmor John was not a “seasoned veteran” as far as being an M.E. patient, Brynmor John was still trying to learn about the illness.
Since Brynmor John was not a “seasoned veteran” of M.E., Brynmor John would not of known if the additional symptoms he was suffering were additional complications.
A Closer Look:
I did a search and I found where Brynmor John lived so we could take a look at the property where he lived and the gradient that he stated he could no longer walk up on the way to the Main Rd.
Brynmor John’s actual home address was: Yale Haven, Station Rd, Church Station, Pontypridd, Rhonnda Cynon Taff, CF38 1AF, U.K. compliments of Welsh Biography Online and Google Maps
Yale Haven is the name of Brynmor John’s house. Many houses in England have names instead of being noted as a number in a street address.
Google Map of the area:
The map shows “Yale Haven” which was Brynmor John’s house.
Just north of Yale Haven is Main Rd. Station Rd is on the left of Yale Haven.
Google Maps Street View:
This is the Station Rd view of Brynmor John’s property which is in back of the trees on the right.
Google Maps Street View of “Yale Haven”:
Yale Haven, which was Brynmor John’s house is on the right. The Main Rd is on the left.
The gradient Brynmor John was talking about is on the right side of the house where the driveway is that leads to the street to the Main Rd.
As you can see, that is a not a long walk.
A person with Mild or Moderate ME could walk that short walk and suffer their post activity exacerbation of symptoms after the fact.
Brynmor John’s symptoms he was experiencing in addition to the abnormal recovery time was different, Brynmor John stated:
“‘Though there is only a slight gradient from our house to the main road, it could have been the North face of the Eiger. I just could not get up it’
Brynmor John could no longer walk up that slight gradient at all!
Brynmor John was 54 years old. If Brynmor John was a healthy person, he should not have had a problem walking on that gradient. The gradient is not a steep gradient.
Up until Brynmor John became an M.E. patient he was able walk up that actual gradient to the main road, if he could not walk up that gradient going to the Main Road, Brynmor John would not have made the statement:
“I just could not get up it!”
Brynmor John should not have had a problem continuing to walk on the property where he lived if the exercise prescription was the proper recommendation.
Was Something Missed?
Brynmor John was advised by his doctor to “Exercise his way back to fitness” as stated in “Magical Medicine: How To Make A Disease Disappear.”
Brynmor John had listened to his doctors advice and attempted to “exercise his way back to fitness” as his doctor advised.
Instead of becoming “Fit,” Brynmor John not only suffered the increase in his abnormal recovery time, he became so weak that he could not dress, he could not tolerate exertion, and he could not walk up the gradient to the Main Road from his house.
We also see no further documentation as far as Brynmor John’s doctor investigating further as to why Brynmor John’s condition was not improving and why Brynmor John could not walk up that gradient.
Brynmor John was still exercising at the House of Commons Gym because he was exercising right before he died, December 15th, 1988.
Brynmor John was also still working as of December 5th which was the day of his last noted contribution to UK Parliament regarding “Environmental Problems.”
Brynmor John was still both working and exercising.
Brynmor John did not improve.
Not only did Brynmor John not improve, Brynmor John suffered the worse complication that one could suffer, Brynmor John went into Cardiac Arrest immediately after he was exercising while exiting the House of Commons Gym.
Why did Brynmor John’s doctor not listen?
Malcolm Hooper’s Magical Medicine: How To Make An Illness Disappear” stated that Brynmor John:
“was irritated by the profusion of psychiatric comment.”
The “profusion of psychiatric comment“that Brynmor John was talking about was the intrusion of the “psychiatric lobby” which was led by Professor Simon Wessely and his colleagues known as the “Wessely School.”
The school of thought of the “profusion of psychiatric comment” or “Wessely School” believes that M.E. is a myth, a psychiatric disorder, or what Professor Wessely believes to be “functional somatic syndrome” or behavioral disorder where the patient has medically unexplained fatigue caused by inappropriate illness beliefs.
Thus, Brynmor John’s doctor did not “hear” Brynmor John’s complaint of symptoms because Brynmor John’s doctor was of the school of the “profusion of psychiatric comment“, better known as the belief of the Wessely School definition of “CFS/ME” which is what the Wessely School classify M.E. as.
The “profusion of psychiatric comment” or “Wessely School” belief for the treatment of “CFS/ME” is psychiatric and their treatment for “CFS/ME” is what is called “CBT” or Cognitive Behavioral Therapy and
“GET” or Graded Exercise Therapy.
The “Wessely School” belief for the treatment of Cognitive Behavioral Therapy is to “cure” the “dysfunctional beliefs” of patients who only “think” they have a non-existent illness called “ME”,
The “Wessely School” belief for the treatment of “GET” or Graded Exercise Therapy was to reverse the change that resulted in deconditioning in patients who avoided activity because the patients had a false belief of illness.
A Few More Clues!
All of the M.E. patients who are reading this, what do some of our lab results show?
If you know the different items in the lab results, which of those items can affect the heart?
What can those items do to the heart?
Can you think of another M.E. patient who died of Sudden Cardiac death because that patient wasn’t examined further?
If you know who that M.E. patient is who I am referring to, what was wrong with that M.E. patients heart?
If you can identify what is being described and asked in the questions above:
-Should Brynmor John’s doctor continued to have allowed Brynmor John to keep exercising “his way back to fitness?”
-Should Brynmor John’s doctor have possibly known what the problem was according to Brynmor John’s symptoms and discontinued Brynmor John’s exercise prescription to investigate further to confirm?
What did Brynmor John’s doctor miss that caused Brynmor John to suffer sudden cardiac death after he exercised in the House of Commons Gym?
Fellow Patients And Others:
If you think you know the answer, please leave it in the comments.
If we the patients are to be effective advocates for this illness, the complications must be pointed out, not just the symptoms that make this illness unique in comparison to other illnesses.
The discussion should not be “Do M.E. or “CFS” patients die”, the discussion should be, what are the specific complications that M.E. or “CFS” patients die from and why do those complications occur!
I included “CFS” because patients are diagnosed “CFS” or “ME/CFS” here in the United States.
There is no need to dance around the truth about this and other complications!
M.E. patients have serious and potentially lethal complications and they must be pointed out!
As the complications are discussed, this information will circulate via the internet and social media that we didn’t have 25 years ago where we could not do that.
Because we as patients could not do that 25 years ago, this illness has gone from the infectious disease department to the psychological propaganda department.
Brynmor John died in 1988 the other patient I pointed about above died 16 years later because of the same thing which was missed causing Sudden Cardiac Death that I did not state yet.
Do you think Brynmor John and the patient who died 16 years later have been the only two patients who died of Sudden Cardiac Death because something major was missed because of something that could’ve been very easy to diagnose?
Yes, I say “EASY TO DIAGNOSE,” and I shake my head because I was an active R.N. and I knew this and I cant believe that there are many physicians today who do NOT know this!
To Be Continued……..
“The whole idea you can take a disease like this and exercise your way to health is foolishness, it is insane.”~Dr. Paul Cheney~
“The Other Side Of The Stretcher” (c) 2014
This blog is not for medical advice.
For medical advice, you must speak with your physician!